Nurses4cleft.org. NURSING. Sue Butcher. SRN RSCN SCM Clinical Nurse Specialist, South Thames Cleft Centre Chairman Nurses Special Interest Group, Cleft Lip and Palate. What do specialist nurses do?. Nine centres some still dual sites
Sue Butcher. SRN RSCN SCM
Clinical Nurse Specialist, South Thames Cleft Centre
Chairman Nurses Special Interest Group, Cleft Lip and Palate.
Hospital post op discharge
Home visit post op follow up
Phone calls for progress report
AntenatalSo what do I do?A typical working week
All babies born with a cleft lip and/or palate are to be diagnosed at birth. (NSF 1 & 11)
All babies are to be referred by relevant professionals to the cleft team within 24hrs of diagnosis.
(NSF 1 & 11)
The Clinical Nurse Specialist should visit within 24 hours of receiving referral.
(NSF 2 & 11)
A feeding plan should be devised and documented that supports the mother’s preference for feeding at the first visit.
(NSF 1, 2 & 11)
All babies should have a nationally recognised feeding assessment prior to the introduction of assisted feeding.
(NSF 1, 7 &11)
All mothers who choose to breast feed should be offered an electric breast pump, for as long as they require, at no cost to themselves.
(NSF 2, 3 & 11)
All parents to be offered
Counselling and support
Verbal and written information re cleft treatment and management
Contact with a family of a child with a similar diagnosis
Written information about CLAPA.
(NSF 1, 2, 3, 6, 9 & 11)
All babies with cleft palate referred to local audiology/ENT
(NSF 1, 3 & 7)
All babies should be visited at home by a Clinical Nurse Specialist within one week of discharge (NSF 1, 2, 3 & 8)
Parents are to be referred by relevant professionals to the cleft team on the day of initial diagnosis. (NSF 1, 2, &7)
Parents are to be given written details of the cleft team, on the day of initial diagnosis.
(NSF 1, 2 & 7)
Parents are to be contacted by the Clinical Nurse Specialist within 24 hours of receiving referral.
(NSF 1, 2, 4 &7)
Parents are to be offered a visit at an appropriate and negotiated time and place.
(NSF 1, 2, & 7)
The Clinical Nurse Specialist shall make contact with the primary health care team during the antenatal period. (NSF 1, 2, 4 & 7)
All parents are to be offered these services in the 2nd and 3rd trimester.
Counselling and support
Appropriate feeding preparation and plan for immediate postnatal period.
Verbal and written information re cleft treatment and management.
Opportunity to meet other families
Opportunity to meet the cleft team
Written information about CLAPA (NSF 1, 2 & 7)
The prenatal diagnosis of classification of lip and alveolar clefting should correspond with the diagnosis at birth. (NSF 2 & 7)
“Thank you for all your support, all our worries were dealt with so well and now we can look forward to an exciting future”
“I felt you were there for us and ensured that we had the best care possible, I can’t really express how much that support has mean to us”
“There were times when we didn’t know how we would have got through this without you”