Democracy, Diversity, & Disability 14th Annual Meeting of Society for Disability Studies Winnipeg, MB June 20--23, 2001. A Loneliness that Humbles the Spirit Jean Campbell, Ph.D. Director, Program in Consumer Studies and Training Missouri Institute of Mental Health
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A Loneliness that Humbles the Spirit
Jean Campbell, Ph.D.
Director, Program in Consumer Studies and Training
Missouri Institute of Mental Health
5400 Arsenal Street, St. Louis, MO 63139
University of Missouri—Columbia School of Medicine
Social support of people with mental illness is critical to their reintegration into the community, and their efforts towards recovery.
It is our attitudes and behaviors towards
each other that determine our opportunities
as a society we must seek ways to repair the damage to people assaulted by fearful and uncaring communities.
hospital and clinic.
If you tell them about your history and apply for a job they won’t give you a job. If you tell the landlord about it when you’re applying for a room or an apartment they won’t give you that apartment. They generally avoid you once they find out.
interview, The Well-Being Project (1989)
Some clients are dangerous, but very few of them. Fewer than society would think, because most mental health clients have exactly the opposite problem -- they’re too passive. They wouldn’t even hurt a fly. I know I wouldn’t hurt a fly.
The Well-Being Project:
Mental Health Clients Speak for Themselves
In 1979 Prager and Tanaka reported to the Ohio Department of Mental Health on the results of involving mental health consumers in evaluation.
They concluded:“Representing the consumer’s perspective on the meaning of mental illness and the correlates of ‘getting better,’ the process of client involvement in evaluation design and implementation is not only realistic and feasible; it is, we feel, a professional necessity whose time is overdue.”
Triangulation: Mental Health on the results of involving mental health consumers in evaluation.
family members (N=53)
mental health professionals (N=150)
self-administered interviews (mail)
It’s going to take years for people to respond to what we’re trying to do. People don’t believe us, that we’re capable of doing anything. They consider us irresponsible, incompetent, crazy, insane.
But the trouble is, self help works.
John Price (The Well-Being Project, 1989)