Creatively Supporting Communities. Simone Stenekes RN, MN, CHPCN (C) Clinical Nurse Specialist - WRHA Palliative Care & the Canadian Virtual Hospice.
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Creatively Supporting Communities
Simone Stenekes RN, MN, CHPCN (C) Clinical Nurse Specialist - WRHA Palliative Care & the Canadian Virtual Hospice
Mike Harlos MD, CCFPMedical Director, WRHA Palliative Care Physician Consultant, Canadian Virtual Hospice
Dr. Gerri Frager Medical Director Pediatric Palliative Care IWK Health Centre Halifax Nova Scotia Canada
without Pediatric Palliative Care Expertise
Can you name the concerns that you may have about caring for a child with a significant illness or who is dying?
With heartfelt thanks to the families of: Jenica Saulnier Monica Smith and many other children and familiesWho we have come to know and whose pictures, stories, and memories were so generously shared
TOTAL POPULATION of 30 Million Deaths/yr
Developmental considerations - Disparities in illnesses
Assessing pain & other symptoms & relief
Communicating with children helpful modifications
Address the family’s concerns as well as the child’s
Timing of Understanding That Child Had
No Realistic Chance for Cure
Physician - 206 days
Parent - 106 days
Wolfe, et al 2000
“Treatment often lasts for several years, and the parents and children become completely dependent on the regional center for medical and emotional care, during which time the district pediatrician and family doctor become strangers to the child, the family, and the illness.”
- Stevens and Owens BMJ 1987
BABY R.S. A Child’s Care to ponder while sipping your coffee
Part 2:Development of a Collaborative Approach to Pediatric Palliative Care in Winnipeg
Mike Harlos MD, CCFP
Medical Director, WRHA Palliative Care
Physician Consultant, Canadian Virtual Hospice
Simone Stenekes RN, MN, CHPCN (C)
Clinical Nurse Specialist -
WRHA Palliative Care
and the Canadian Virtual Hospice
Pediatric Palliative Care Working Group
Achievements to Date
collective wisdom-collective compassion-collective skills
You’re a song,
a wished-for song.
Go through the ear to the center
where sky is, where wind,
where silent knowing.
Put seeds and cover them.
blades will sprout
where you do your work.
On being a witness
Ensure the Emotional Impact on the Health Professional of Providing Care is Addressed
It does not mean to be in a place where there is no noise, trouble, or hard work
It means to be in the midst of all those things and still be calm in your heart.