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Diabetes: A Family Matter A Toolkit for Appalachia

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Diabetes: A Family Matter A Toolkit for Appalachia

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    1. Diabetes: A Family Matter A Toolkit for Appalachia Sharon A. Denham, DSN, RN Professor, Ohio University School of Nursing Director, Appalachian Rural Health Institute

    2. Support & Funding Centers for Disease Control and Prevention National Diabetes Education Program Ohio Department of Health Diabetes Prevention and Control Program Ohio University’s Appalachian Rural Health Institute (ARHI) Ohio University, Diabetes Research Initiative (DRI). Ohio University’s Office of Research and Sponsored Projects Challenge Grants

    3. Dedication: Kimberly Malone

    4. Appalachia

    5. Formative Research Findings Environmental Scan (Winter, 2006) Health Professionals and Diabetes Indicators Diabetes Education Low Health Literacy Qualitative Studies (2007) Family Routines in Diabetes Self-Management Living with Diabetes in the Appalachian Region Family Health Model (Denham, 2003)

    6. Assumptions for Toolkit Development Type 2 diabetes Rural rather than urban Family-focused Cultural sensitivity Literacy & low health literacy Community/family involvement

    7. Focus of the Toolkit Healthy lifestyles, diabetes prevention, and diabetes self-management Cultural identification (avoid stereotypes) Empowerment Living with diabetes Diabetes educators/others as leaders Volunteers

    8. SUGAR Helpers Support to Unify Generations in the Appalachian Region

    9. Toolkit Development Novel approaches/innovative ideas Edutainment Interdisciplinary input Web 2.0 availability Multiple audience types

    10. Storied Lives of Diabetes Lived experience vs. biomedical experience Narrative competence about clinical care???? Diabetes as a “Family Disease” Diabetes more than individual problem (extended kin networks, place, faith, etc.) Health legacies Reconstruct new stories (e.g., not being “beholden to others”)

    11. STUCK in the STORY

    12. Citizen Action Give local people a voice. Take personal actions to improve the quality of life of those that live in your community. Work with others to positively mobilize the resources available in your community to address the health of local residents. Empowerment and active involvement of all local residents.

    13. Citizen Action Train the trainer model Develop and activate community coalitions Utilize SUGAR Helpers (Support to Unite Generations in the Appalachian Region)

    14. Web-Based Delivery Broadband challenges Health care professionals Persons with diabetes and families Health consumers Others

    15. Program Materials Diabetes Educator Manual SUGAR Helper Manual Series of brochures Posters Fotonovellas Film Plays Toolkit Activities Bookmarkers

    16. Program Overview EDUCATOR MANUAL Community collaboration Volunteer recruitment materials Media campaign materials Education al program Sustainability VOLUNTEER MANUAL Conversations about diabetes/not diabetes educators Make diabetes visible in rural communities Work with personal lifestyle first Interact with own family, local groups, and community

    17. Brochures (9) It’s a Family Matter A Community Concern It’s in the Genes Healthy Living Getting Diabetes Information Family Health Routines Depression Talk to Your Kids When it Gets Complicated

    18. Fotonovellas Lack of Family Support Positive Family Support

    19. Other Materials 3 twenty minute plays Film: “Living with Diabetes in Appalachia”

    20. Contact Information Sharon A. Denham, RN, DSN Professor, Ohio University School of Nursing Director, Appalachian Rural Health Institute E365 Grover Center Athens, Ohio 45701 740-753-4499 denham@ohio.edu www.diabetesfamily.net

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