Back to Basics – Electronic Patient Registry Essentials. Adam Baus MA, MPH West Virginia University Department of Community Medicine Office of Health Services Research National CDEMS Support Group Webinar 01/27/2010. Special Thanks to Our Funders.
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Back to Basics –Electronic Patient Registry Essentials
Adam Baus MA, MPH
West Virginia University Department of Community Medicine
Office of Health Services Research
National CDEMS Support Group Webinar
Special Thanks to Our Funders
This presentation was supported by Grant/Cooperative Agreement Numbers U32/CCU322734, U59/CCU324180-03, U50/CCU321344 from the Centers for Disease Control and Prevention.
Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the Centers for Disease Control and Prevention.
“If you don't know where you are going, you might wind up someplace else.”
What has worked well?
About Patient Registries - AHRQ
Registries “Then and Now”
1974 – E.M. Brooke, in a 1974 publication of the World Health Organization, describes registries for health information as “a file of documents containing uniform information about individual persons, collected in a systematic and comprehensive way, in order to serve a predetermined purpose.”
2007 – AHRQ describes a patient registry as “an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes.”
Part 1: Registry Planning
Part 2: Registry Design
Part 3: Registry Buy-In
Part 4: Data Collection & Quality Assurance
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